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11.03.2010

Where have we been?

Not getting a g-tube!

Thanks all of you for your thoughts and prayers and sorry for the delay in updates.

After a week in the hospital we were released for the weekend with the plan to return the following week for g-tube surgery scheduled for Wednesday. We were both pretty sad about it but we had finally come to terms with the g-tube being the best of the options available right now. But, on Monday, David decided to try giving Drew his nasty med mixed into a bowl of sweetened yogurt, in one last ditch effort to get him to take it orally... and the kid gobbled the stuff up, opening his mouth for more. So despite the skepticism of our medical team (okay, mommy was pretty skeptical too) the g-tube evader was let off the hook again, while we give the oral route a try. It has now been 9 days of Drew taking his full dose of meds in a bowl of yogurt.
His breath holding has somewhat improved, he still has episodes once a day, but they are much shorter in duration and we continue to pray and hope that each one will be the last.

And what have the three of us been doing when we're not getting a g-tube?

Carving pumpkins, staying up late, eating yogurt, visiting with Grandma and Grandpa, drinking tea, walking the seawall, baking bread, eating muffins, welcoming a new cousin into the world, harvesting neglected green beans, wearing preppy sweater vests, enjoying pumpkin spice lattes, reading new books, planting tulip bulbs, ordering takeout, reading emails, touring the city gardens, napping in the carrier, looking for bigger apartments, catching fall leaves, shopping at Granville island, dressing up like a mouse, loading the stroller full of groceries, savoring pumpkin beer, waking up all night long, Christmas shopping online, trick or treating for the first time, wearing double hoodies when we go out, trying so hard to crawl, posing for pictures, and eating skittles, to start.






**We had tried mixing it with food before, but that was back when Drew only ate one or two spoonfuls at a time, and at that concentration the stuff was so nasty it would turn him off of eating solids entirely
. Now that he reliably eats a small bowl full, I guess the concentration is dilute enough that he finds it acceptable. Nevermind that sickly sweet yogurt is pretty much the only solid he eats.

*** the great pictures in this post are mostly taken by Grandma

7 comments:

amanda + daniel said...

hooray! how great to hear all the things you've been up to while not getting a g-tube!

Charlotte said...

No g tube is great! Great pictures! Think of you a lot.

Anonymous said...

God answers prayer!! I am so glad that there is no g-tube to jerk out with nimble 8+ month old fingers!!
Did Liza and Ben have a baby?
Aunt Jane

Mark and Pam said...

horray that Drew loves yogurt like aunty pam and that the breath holding spells are a little shorter and that there is no g-tube yet! What wonderful news!
I especially like the preppy sweater vest, it's very grown up.
thanks for the update, it sounds like you guys are having lots of fun!
Pam

jo/bob said...

YAHOO !!!! No g-tube! Looking forward to meeting the youngun and seeing you......

Anonymous said...

just a spoonful of sugar helps the medicine go down, in a most delightful way! eat smaakelijk Drew.. Thinking of you often, Ruby

Chris and Christina said...

looking for bigger apartments? feeding drew skittles already? any mouse pictures? despite the waking up all night long part it sounds like you're having some lovely fall days. i love the sweater vest. adorable pictures!